Reach out.

I haven’t written much since I am home from Europe. To tell you the truth, while a ton of fun, that trip was hard on me physically. I have received messages asking me why I haven’t written, so now I will explain.

Having a chronic illness sucks. That sums that up for me. I was diagnosed with psoriasis and psoriatic arthritis in September 2016. They are both autoimmune diseases. What that means is that my skin looks like someone dragged me through gravel. I have red spots and psoriasis everywhere. Psoriatic arthritis is a chronic, inflammatory disease of the joints and the places where tendons and ligaments connect to bone. The immune system creates inflammation that leads to swelling, pain, fatigue and stiffness in the joints.

Unfortunately, the Enbrel I was taking did not work for me. Last week I started Cosentyx. That’s the drug that Cyndi Lauper takes on the “See Me” commercials. Last Friday John gave me my first two injections in my stomach. We will do that again today. God bless him for being such a support to me. I will know if it works for me in three to sixteen weeks.

Over the last two weeks things have gotten worse for me. It is only the last two days that my pain level has not been excruciating at night. I slept well both nights. Before that, not so much. Writing this blog was not on my mind.

When I look down at my hands and see them swollen and spotted with psoriasis it is hard to not get discouraged. I cannot cross or snap my fingers any longer. It is hard to open a water bottle or cut my food. It is hard to hold babies, which makes me sad. When I can, I paint. I also love to listen to music. Two of many things that fill my soul.

My feet, toes and ankles are swollen. My knees throb. Walking is difficult. Steps are a nightmare. I am super blessed that I work for myself and work from home because loosing my job would be another disappointment.

Why am I telling you all of this? Well, because with the exception of the death of my son, Joe and loosing my parent’s this is the first time I feel like I have experienced depression. There are times when it is hard and all consuming. It can seem like there is no way out. Fortunately for me, I believe (a girl has to have hope) it is temporary. Through diet and medication I will find relief.

I am sure that in your life you know at least one person who is struggling, be it physically, emotionally or both. Be kind to them. Reach out to them. It is hard for them to reach out. Life is tough enough but without support I can’t imagine how I would be coping. John and Sadie are both so good to me. And, when I need it my sister helps me with my work.

There is a famous quote, “Everyone you meet is fighting a battle you know nothing about. Be kind.” It is so true.

So, today, reach out to someone you know who may need your support. Just hearing from you may make all the difference to them.

 

 

 

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